Saturday, June 26, 2010

Zoo & Mason's Mountain Run

The second week in June, the kids and I headed up to Billings. Jordyn had an endoscopy scheduled on Wednesday, so we just stayed the rest of the week to spend time with my parents. We have been seeing her GI doctor almost once a month lately, trying to figure out the cause of her horrible reflux and why NOTHING we've tried in the past two years has helped at all. So, we did an endoscopy (putting a small camera in your esophagus and stomach). Last one we did was two years ago when her throwing up started. And guess what? The results showed nothing besides some irritation from throwing up! Surprise! Even more surprising was that she no longer has eosiniphilic esophagitis (EE). Her first GI doctor diagnosed her with that during the first scope. I thought this whole time that the EE was one of the reasons she was throwing up. So... I really don't know what to think any more.
But, through a string of events with one of her meds (I won't go into the boring details!), I'm wondering if one of her medications is causing her to throw up. We started this certain med. about two years ago when the throwing up began and one of the side effects IS throwing up. So I talked to her docs (they weren't as convinced as I was) and we are going to try weening her off that medication and possibly give her a different one. I'll keep ya posted. I dream of the day that Jordyn doesn't throw up anymore (I'm sure she does too)! Hopefully that day is in the near future.

So, on to the fun stuff. It was finally nice weather and we took off for the zoo! I rented a double stroller for Carter and Evan and I have to say that was the best $6 I've ever spent! I think the big hit was feeding the goats and watching the sea otters. Most of big animals were all sleeping, but the kids loved the animals they did get to see.

Love love love the picture of Jordyn and the goats! And I LOVE the picture of me and Jordyn together too!

Just a cute pic of the boys actually being nice to each other!

Now for my favorite part of our whole trip! A few weeks before we came, my parents sent me an article from their newspaper. It was about a family putting on a 10k Trail Run and 2 mile walk, in Red Lodge,MT on June 12. It was in honor of their 11 yr. old son, Mason, who had died a year ago, from a mitochondrial disease. They also wanted the race to honor all special needs kids and the proceeds were going to The United Mitochondrial Disease Foundation. When I read the article it just gave me goosebumps and I knew we HAD TO go!
Here's a link to the article: click here
This is where the race was, Lions Camp in Red Lodge, MT. I think we all had our doubts as we were driving up there. It was rainy and cold. We wondered if many people would even show up. But, we had driven over an hour to get there, so we figured we better just go! There were quite a few people there and luckily there was a cabin with a fire for Jordyn to sit by. While I ran the 10K trail race, my dad took the boys and they did a treasure hunt that was put on for the little kids. My mom stayed with Jordyn by the fire.
I really really loved the race! It was pretty challenging... the first 1.5 miles was uphill and there were plenty more hills after that too. But, there were a few downhill parts where you could catch your breath. I'm hoping I can find more trail runs to do in the future. It was kinda hard to come home and start running in the "city" again!
After the race they had a BBQ. We got to talk to the parents who had organized the event. Jordyn was the only special needs child there and Mason's mom kept telling us how grateful she was that Jordyn came. She said that Jordyn being there had made the whole event worthwhile. She even started getting emotional as she was talking to us. She went and got Jordyn a really nice gift from the treasure hunt prizes. A few of Mason's other family members also came up to us and told us how grateful they were that we had come and brought Jordyn. I think after talking to people, esp. Mason's mom, none of us had a doubt in our minds that we were supposed to go that event. I'm so glad we went!

Grandpa, Carter, and Jordyn after the BBQ.

One of the best pictures of Jordyn EVER, I think!

They had face painting for the kids and a pretty good band playing too.

Grandma and Carter

Love it up in the mountains, so beautiful!!! What a great day, can't wait until next year!

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momma k said...

One of the funniest things at the Run was watching Evan get his mustache painted. He stuck out his upper lip like he was going to have a good shave! We had fun too.

Branden and Andy said...

I love the pictures, all of them are so sweet. The pictures of Jordyn smiling are presious she seems so happy and content. I misss you guys!

Jamie said...

I love that picture of Jordyn! Looks like you're doing great,Emily. I hope you find an answer with Jordyn's reflux. That has to be so frustrating.