Jordyn's Appointments - Part One

Now that I have taken a few weeks off due to giving birth to Carter, it's time to get back in the swing of things. That means taking Jordyn to all of her appointments! I was looking at my planner today and realized we have 2-3 appointments every week, for the next four weeks! We are gonna be busy!

This past week, we've gone to two appointments already. The first was an evaluation for a sleep study. I won't go into detail about all of her sleep issues or I would be typing for hours. But, the sleep study may give us insight into why she doesn't sleep well and if there is a cure. So, we are scheduled for the sleep study in early February. I am very anxious to see what the sleep study will reveal about Jordyn.

Our second appointment was a visit to a Neuropsychologist. I was thinking that this appointment might be kind of boring and not very beneficial. (Awhile ago our neurologist recommended that Jordyn go to a "clinic" where several different doctors meet with her and then give us recommendations on who else she might benefit from seeing.... one doctor recommended we see a neuropsychologist) But, much to my surprise, it was a great appointment! The neuropsychologist was extremely interested in Jordyn, which always makes me happy! She was reading Jordyn's file and kept saying," Hmmmm. Wow! Oooh. Hmmm. I see." The doctor said that she specializes in kids with developmental disabilities and that she has never met any child like Jordyn and that Jordyn is very unique. So, we ended up talking for 2.5 hours! Most importantly, she told us about a Developmental Neurologist that comes to Boise a few times a year from N. Carolina. She really wants us to meet with him. She also told us about a intense preschool program for developmentally delayed kids, that she thought Jordyn would benefit from. So, we are going to check out both of her recommendations. Another thing the doctor kept talking about during the appointment was the fact that I was only 25! She couldn't believe I was only 25 and dealing with all of Jordyn's problems... and that I had two other kids also. (We get this reaction a lot!) I told her that I really feel older than 25! So, for the whole appointment she kept complimenting me over and over on how well I was doing taking care of Jordyn & dealing with the stress/worries of taking care of a special needs child. And she couldn't believe all of the doctors we've seen and programs we've been involved in..... even since we've moved here. I was feeling pretty good about myself after we left! haha Sometimes it's good to hear those compliments every once in awhile because I will often begin to doubt that I'm doing enough for Jordyn. But, I often realize that I really am doing all I'm capable of!
So, that is the short version of her two appointments. Next week we are going to a geneticist. This will be the third geneticist we've seen, so I'm not getting my hopes up that we will find out anything new. We'll meet with a geneticist who specializes in metabolic disorders. He is from Oregon and comes here every few months. Then, we'll be having our check up with our developmental pediatrician (he mainly helps us with Jordyn's behavior problems)... and then the sleep study after that! I'll update you after those appointments!